I diagnosed my hEDS on Tik Tok

I wrote for the Metro on my 20-year long journey to getting a diagnosis of hypermobile Ehlers-Danlos Syndrome. None of the doctors, medics, chiropracters, surgeons, specialists, or physiotherapists who have tried to help me, or have operated on me 12 times ever figured it out.

Now, I’m joining the EDS UK charity’s campaign to secure funding, appropriate care pathways and help with pain management for patients like me. Sign this petition to lobby the Government, so patients like me don’t see our mobility go down the drain and end up living in agonising pain, with no NHS recourse for help or support.

Read the full article here.